History of the UK Renal Registry

The UK Renal Registry (UKRR) was established by the Renal Association in 1995 as a resource for the development of patient care in renal disease, with initial financial support from the Department of Health (DH) and industry, but within two years was financially independent of both. From the beginning, the management committee had representatives from the British Association of Paediatric Nephrologists (BAPN), the British Transplant Society (BTS), the Scottish Renal Registry (SRR) and patient organisations. Before this, information for England, Wales and Northern Ireland was collected via European Renal Association and the European Dialysis and Transplant Association (ERA EDTA), previously named the EDTA Registry, on paper; this was neither efficient nor effective. The UKRR expanded the dataset and led the way in implementing electronic data extraction.

The UKRR was founded by Professor Terry Feest assisted by Dr David Ansell and has been based at Southmead Hospital in Bristol since 1997.