Working with Us

The UKRR research team welcomes contact from renal clinicians and other researchers who would like to access UKRR data and collaborate with the UKRR on grant applications.

Currently, we only release data to academic and clinical organisations.

Applying to access UKRR data – new process

The UKRR is permitted to share the following three datasets for audit and research, either at an aggregate or individual (pseudonymised) level:

  1. Core dataset – see version 4.2 for the list of data items that the UKRR aims to collect – please email us to check that (a) we hold the data of interest to you and (b) data completeness is sufficiently high for your proposed analyses – see the UKRR data completeness portal.
  2. Lab AKI dataset – see Think Kidneys for more information.
  3. Patient measures dataset – this includes PREM, PAM and PROM data.

The UKRR is also permitted to share five data items from its linked UKRR-NHSBT dataset – date of transplant, donor type of transplant, type of transplant received, cold ischaemia time and human leukocyte antigen mismatch. If your application includes NHSBT-derived data and their release is approved we will ask you to fill out the NHSBT data release form – please return this to us by email and we will liaise with NHSBT on your behalf. If you wish to access a wider range of NHSBT-held data items please visit their website for further details.

Aggregate level data

Aggregate data include tables and graphs based on statistical analyses.

To access aggregate data download and complete the aggregate data application form and return it by email to ukrr-research@renalregistry.nhs.uk

We accept applications for aggregate data throughout the year. Applicants will be notified of the UKRR’s decision within two weeks. If your request is approved, the delivery of the data will require at least a further two weeks.

Please familiarise yourself with the UKRR’s authorship policy.

Individual (pseudonymised) level data – new process

Please see the flow diagram for a summary of how to apply to access individual level data. The main steps in the process are:

  1. Submit an expression of interest (EoI) at any time.
  2. If your EoI is approved you will be invited to submit a full application form and data protection impact assessment (DPIA) at least 4 weeks prior to a Data Release Group (DRG) meeting.
  3. Your application and associated DPIA will be assessed at the UKRR’s DRG which meets quarterly.
  4. If your application is approved you will be notified within 2 weeks and will have to complete a data sharing agreement (DSA) prior to the release of any data.

Contact us if you have any queries. The DRG meeting dates in 2020 are:

  • Tuesday 10th March
  • Thursday 4th June
  • Tuesday 15th September
  • Thursday 3rd December.

Any output without a UKRR co-author must include the UKRR’s acknowledgement and disclaimer statements. Any outputs with a UKRR co-author must be approved by the UKRR co-author before submission for publication and the output must include the UKRR’s acknowledgement text.

Please familiarise yourself with the UKRR’s authorship policy.

Collaborating with the UKRR on grant applications

Please email us at least four weeks before the grant application deadline and longer if it is a particularly complex grant. We will ask you to complete a costing template to understand exactly what involvement you want from the UKRR.

Downloads