Here patients and their support network can learn how the UK Renal Registry (UKRR) manages patient information – see our patient opt out leaflet and poster – and read about some of the work the UKRR does, in particular the annual report – see our plain English summary of the annual report written together with the Renal Association Patient Council.
The privacy notice (available here) sets out how the UK Renal Registry uses and protects the information that it collects. It should be read in conjunction with our terms and conditions. We may make changes to this privacy notice from time to time. If these are substantial we will post a message on the main page of the UK Renal Registry website. This privacy notice is effective from 18th July 2018.