UKRR 21st Annual Report Summary for Patients – analyses of adult data to the end of 2017
To download the summary of the 21st Annual Report for patients please click here.
Welcome to the UKRR’s annual report and analyses of patient data. We hope you will enjoy reading the summaries of information about kidney disease and treatment in adults in the UK in 2017.
Many thanks are due to the Renal Registry team for their hard work in putting all the data together and, of course, to our NHS staff for their hard work in looking after those of us with kidney failure. While it’s great to see that more than half of the 60,000 people with kidney failure are now being treated with a transplant, it is important to note that the great majority (72%) of new patients with kidney failure started on haemodialysis. This leads to questions about how much choice we get. You will see that there is a big difference between centres; with for example 3 out of every 10 patients starting their treatment with a transplant at some places and no patients starting with a transplant at others. Of course, age and other medical conditions affect a person’s suitability for a particular treatment and there will be lots of reasons behind this. You can also learn a bit about the average eGFR (kidney function) for someone starting treatment for kidney failure, how long most people spend on dialysis, and lots more.
If you are someone with kidney disease or want to see how kidney care was delivered in the UK in 2017, this information is for you. If you want to see the details, follow the link to the full report. If you want to know more about your own centres ask your medical team.
It may also be useful to look at this summary alongside the Patient Reported Experience Measures survey, which tells us what patients think of their care and indicates that sharing decisions about care is a key area in which patients think more could be done.
This information was produced in conjunction with the Patient Council, which exists to give guidance to the Registry on things that are likely to be of particular importance to patients. If you would like to join the group and make your voice heard, please get in touch.
Fiona Loud – Chair, The Renal Association Patient Council and Kidney Care UK representative