Patient Information

UKRR 22nd Annual Report summary for patients – analyses of adult data to the end of 2018

To download the summary of the 22nd Annual Report for patients (adult data) please click here.

I’m writing this in the knowledge that the NHS will have changed since the time this data was collected and that we all have so much more to learn because of the pandemic. At this stage we do not know whether that shift will be permanent.

I would like to record a huge thank you to the Registry for its amazing endeavour in collecting, interpreting and sharing data on the path of kidney failure. This has always provided an invaluable resource for us as patients and for the kidney community to understand what care, choices and treatments look like in normal times and, in future, how any of those things may have changed because of the coronavirus.

What this report shows is that there are more people (67,000) now receiving treatment for kidney failure and that more of them (37,000) have transplants than ever before. Good news. Conversely, of the 8,000 people who had kidney failure in the year this information was collected, more than 70% of them started on in centre dialysis. This seems to be the wrong way round – having a transplant pre-emptively where possible or having dialysis at home are great options too.

Sadly, kidney failure is dangerous and harmful, and we can see here how it shortens our lives. But numbers of people having anything other than unit-based dialysis are still variable between centres, despite good work on quality improvement. We are very fortunate to have our NHS to look after those of us whose kidneys no longer work, but I encourage everyone to ask questions about what their options are, and staff to give us the education and information so that wherever we live the opportunities to have treatment at home or have transplants sooner can also be explored. Sharing and understanding these decisions, and revisiting them regularly, has never been so important.

Fiona Loud, chair of the Renal Association Patient Council