21st Annual Report – data to 31/12/2017

This year’s report marks a significant departure from the format of previous years. In consultation with the wider renal community, we have devised a simpler, greener, predominantly online report, where the audit measures presented are directly linked to The Renal Association’s guidelines. The chapters have been re-designed to reflect treatment types (haemodialysis, peritoneal dialysis and transplantation) or stage (incidence and prevalence), rather than the biomedical parameters.

Most significantly, we decided to reduce substantially the amount of clinical commentary on the data to bring us more in line with other registries’ reports and to allow us to focus our energy on speeding up the reporting of the data. This will also free up UKRR resources, enabling us to conduct a wider range of audit and research analyses.

Any novel analyses will in future be published outside the report to increase their impact – forthcoming publications include diabetes and ethnicity. We also plan survival analyses for patients in England and Wales that are adjusted for comorbidity, using the linkage between the UKRR database and the Hospital Episode Statistics database.

To increase accessibility and impact of the UKRR’s audit work to patients and carers, we have developed in partnership with The Renal Association Patient Council, a summary of the annual report for patients, in plain English and with infographics.

Two clinical summaries of the report – one for adult data and one for paediatric data – will be published in Nephron, enabling citation of the annual report findings.

Ron Cullen – CEO, The Renal Association